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Independence Day for Patients? Not Always

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Jarrod Shapiro
Dr Lawrence Harkless, DPM

Happy 4th of July to all of our PRESENT e-Learning Systems readers! I hope your Independence Day is full of fun and relaxation.

This year’s holiday has me thinking about my patients’ independence. Working in Pomona, California exposes me to a lot of diabetic patients, so obviously I’m going to be treating a lot of wounds, infections, and amputations. These patients often go through some very difficult life decisions, and these situations have a significant impact on their quality of life.

Take for example a recent diabetic patient of mine who in the past underwent several toe amputations on one foot. As a result of the biomechanical imbalances, she had clawtoe deformities of the remaining 2nd and 3rd toes (she had half of her great toe). Her 3rd toe now has a bone infection and will require surgery soon.

Apparently I am a much more aggressive surgeon than the prior doctors who whittled away at her toes, since I recommended a transmetatarsal amputation and Achilles tendon lengthening. We had a serious conversation about her options, and we decided together to go down this route.

The rub of this situation is that the affected side is the right foot. What does this bring to mind? You got it: driving. For several weeks after the surgery, she will not be able to drive, which as she told me, is a significant challenge. She takes care of her brother and works a full time job. Here we are talking about limiting her mobility in addition to removing the remaining part of her forefoot. Her independence will be sorely reduced, at least for the initial recovery, before she returns to prescription shoes.

This is an unfortunately too common occurrence, especially for those of us treating patients with lower extremity issues. One of podiatric medicine and surgery’s biggest challenges is the fact that the feet are so necessary for simple mobility. Undergoing shoulder surgery, for example, might limit the use of an arm, but it doesn’t stop one from walking. Try maintaining your independence when you have one good foot and have to use crutches or a walker to ambulate. There go the hands too! Couple this with the fact that the foot often takes longer to heal than the rest of the body, and we have a recipe for complete loss of autonomy.

Want to make it even more challenging? I commonly offweight diabetic foot ulcerations with instant total contact casts (iTCC). For those of you not familiar with this, you put your patient in a walking boot and then prevent the patient from removing it by wrapping fiberglass cast tape around the boot. If you don’t use this method, I highly recommend it. Without getting into a whole conversation, I’ll tell you that Armstrong has shown this method is as effective in treating diabetic neuropathic forefoot ulcers as the classic total contact cast.1,2 It’s also much faster to apply and easier for the patient to walk. I’ve written about this method in the past, so feel free to peruse the PRESENT Podiatry archives for more information.

Offweighting: What Does The Evidence Show? Part 1: The Options

Offweighting: What Does The Evidence Show? Part 2: The Consensus

Anyway, after applying the iTCC, patients have a harder time ambulating and if on the right extremity, cannot drive. Their balance (poor to begin with due to neuropathy) puts them at increased risk for falls and may require a cane. Autonomy down the drain!

It is incumbent upon all of us taking care of patients to remain cognizant of the challenges involved. We need to be more creative in creating avenues to help our patients increase their independence.

One way to do this is to increase their autonomy in the decision-making process.3 I have found that providing patients with reasonable choices and fully discussing the issues surrounding those choices empowers patients to be part of the decision, which provides a sense of control and emotional autonomy.

Some interesting new work with lower extremity amputee veterans undergoing rehabilitation is applicable to our non-veteran patients in similar situations.

Conclusions from this work are:4

  • Professionals should focus on abilities and not disabilities.  
  • We should incorporate autonomy, structure, clear expectations, goal setting, and actively adjusting goals.  
  • Facilitating collaboration between caregivers will also help patients. A team approach to this type of patient situation may lead to creative solutions that create patient independence.  

Ideas to improve autonomy:

  1. Utilize online services such as Instacart (www.instacart.com) to deliver groceries. Other options such as Yelp (www.yelp.com) and UberEATS (www.ubereats.com) also provide delivery services. Other sites such as Amazon, through their Kindle device, allow downloads of books. There’s also a Kindle app that can be used for free with smart phones or other devices.  
  2. Support networks and friends help keep patients occupied. For example, faith-based organizations often have people who can visit those recovering and help out on a limited basis.  
  3. Some libraries deliver books to people who are homebound. 
  4. Have patients change their house around to support their limitations postoperatively. For example, setting up a location downstairs in a two-story house is helpful, rather than slogging it up the stairs. 
  5. Consider psychiatric support services if depression is a concern.  
  6. Recommend having patients set themselves up preoperatively with personal goals to accomplish while recovering. For example, recovering after surgery may be a great excuse to finish that art project. 

It’s often difficult for those of us not dealing with these limitations to lose sight of how significant the lack of autonomy can be. Consider applying some of these ideas to your patients, and maybe you will be responsible for making their July 4th holiday a true independence day.

Best wishes.
Jarrod Shapiro Signature
Jarrod Shapiro, DPM
PRESENT Practice Perfect Editor
[email protected]
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References
  1. Armstrong D, Lavery LA, Wu S, et al. Evaluation of removable and irremovable cast walkers in the healing of diabetic foot wounds: a randomized controlled trial. Diabetes Care. 2005 Mar;28(3):551-554.
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  2. Katz I, Armstrong D, Harlan A, et al. A Randomized Trial of Two Irremovable Off-Loading Devices in the Management of Plantar Neuropathic Diabetic Foot Ulcers. Diabetes Care. 2005 Mar;28(3):555-559.
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  3. Entwistle VA, Carter SM, Cribb A, et al. Supporting Patient Autonomy: The Importance of Clinician-patient Relationships. J Gen Intern Med. 2010 Jul;25(7):741–745.
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  4. Christensen J, Langberg H, Doherty P, et al. Ambivalence in rehabilitation: thematic analysis of the experiences of lower limb amputated veterans. Disabil Rehabil. 2017 Jun 20:1-8.
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